Patient Advocacy in Myelofibrosis Care


Experts discuss patient advocacy, empowering patients in accessing treatments, educating them about health care systems, and collaborating with health care providers for better myelofibrosis management.

This is a video synopsis/summary of a Peer Exchange involving Zahra Mahmoudjafari, PharmD, MBA, BCOP, FHOPA; James Davis, PharmD, BCOP; Victoria Nachar, PharmD, BCOP; Shawn Griffin, PharmD, BCOP; and Robert Mancini, PharmD, BCOP, FHOPA.

In this segment, Mahmoudjafari directs a discussion with Nachar on the crucial role patients play in advocating for themselves and improving access to myelofibrosis treatments. Nachar emphasizes the significance of patient education on navigating the health care system and accessing medications. She underscores the pharmacist’s role in ensuring patients are informed about the therapy, access processes, and points of contact. The conversation highlights the pivotal role of pharmacists in advocating for patients during multidisciplinary discussions, considering socioeconomic factors, and ensuring appropriate therapy selection. Davis contributes insights on pharmacist collaboration with providers in monitoring patients. He emphasizes the frequent touchpoints and communication facilitated by specialty pharmacists, who play a crucial role in assessing symptoms, adverse effects, and adherence. Mancini further emphasizes the proactive management of adverse effects, consistent follow-up, and the pharmacist’s role as an extension of the care team. The discussion underscores the collaborative and proactive approach pharmacists employ to enhance patient outcomes and quality of life.

This summary was AI-generated and reviewed by Pharmacy Times® editorial staff.

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