The Burden of Hemophilia and the Expanding Role of Pharmacists in Patient Support

Hemophilia significantly affects patients’ daily lives, as the constant risk of bleeding, chronic joint pain, and the need for regular prophylactic therapy can limit physical activity, independence, and emotional well-being. Treatment itself—often involving frequent infusions or specialized therapies—can be time-consuming and stressful, further impacting quality of life for patients and their families. The disorder also places a substantial burden on the healthcare system, requiring coordinated care, high-cost therapies, and ongoing management of complications such as joint disease or inhibitor development. Pharmacists play a central role by optimizing treatment adherence, monitoring for side effects, and educating patients on safe activity and self-management strategies. They can also advocate for accessible therapies, assist with navigating insurance and financial barriers, and collaborate with care teams to ensure patients receive comprehensive, continuous support.