/publications/issue/2006/2006-06/2006-06-5583

ON-LINE RESOURCE FOR MOVEMENT DISORDER PATIENTS

Author:

WE MOVE recently launched the Adult Movement Disorder Treatment and Rehabilitation Directory—a one-of-a-kind on-line resource that provides a public health-access directory of health care professionals in the United States. The directory includes neurologists and physiatrists who diagnose and manage patients with multiple movement disorders.

Movement disorders, which impact >40 million US adults and children, include Parkinson's disease; essential tremor; tics and Tourette's syndrome; dystonia; tremor; and spasticity associated with stroke, cerebral palsy, multiple sclerosis, spinal cord injury, and traumatic brain injury.The nonprofit organization

WE MOVE is dedicated to heightening awareness of movement disorders and providing patients and physicians with resources that are designed to enhance treatment and quality of life. It is not uncommon for an individual living with a movement disorder to go undiagnosed or to be treated improperly. "WE MOVE's Adult Movement Disorder Treatment and Rehabilitation Directory is an important step forward for all people living with movement disorders," said Abbey S. Meyers, president of the National Organization of Rare Disorders. "The difficulty of obtaining a proper diagnosis is often compounded by the inability of local practicing physicians to determine the differences between movement disorders so they can be properly diagnosed and treated. Physicians who diagnose and treat movement disorders can tell the difference, and they know the implications of each disorder on the patient and family. Finding these professionals is a major challenge, and the Treatment and Rehabilitation Directory will simplify that task for everyone."